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25 March 2010

Lil' By Lil'.

Today I had a driving assessment with an o.t., (occupational therapist), and a driving instructor.
I LOVED BEING BEHIND THE WHEEL!
Its' a long process, I have a series of assessments over the next 2 months along with some correspondence between my g.p., neurologist and the o.t..
But It's looking good for me and I'm SO happy. I spent over $200.00 in taxi's this week, (thats with discount), as well as 5 hours on the bus...

Just because I can here are some pictures.
(some people see driving as a task, i love it, going fast runs in the blood, for my 30th birthday i bought myself a thoroughbred sportscar (renaultsport megane turbo) that was also safe, strong family car)











(racing on a circuit takes skills, brains and courage, racing on the roads is just plain stupid)

23 March 2010

License To Drive. (great film too)

I had a written driving test last week and my practical assessment is in a few days, (25.3.10), so quite possibly I may get a day time license for an automatic car.
It sounds scary I know but when I am sitting I am able to focus and concentrate more.
For 2 years, (i became ill march/april 2 years ago), I have been dependent on family, friends, volunteer community transport, buses, (i loathe them, not normally, just here), taxi, train, etc. Transport has been a HUGE issue for me.

Driving will allow me a form of independence that I lost and used to rely on SO much. (i will probably be better than 40% of the drivers on the road now)

19 March 2010

Reality Bites. Sometimes.

Today was SO good. I spoke at a weekly event called crossroads held at a local Church & run by volunteers and carers.
I let my situation get the better of me yesterday and seeing others who face MUCH bigger challenges than I do made my issues seem obsolete.
I am sorry for my public self pity explosion and thank you for so many kind words.
I hate that probable a tiny thing set me off to be upset about the bigger things in my life.
Yes I have a personal faith in Christ, I am human though. (he was perfect though, big shoes to fill)
I used to take my weekly frustrations out surfing, drumming, skating, racing my car on a track, painting or riding moto-X
Now I don't have any way of letting frustrations out and sadly my moments of wallowing hissy fits make it on here.
So formally I swallow my tongue and take a bow and thank you for your patience.


I know I am so fortunate compared to so many other people in the world and I hate that I hated on myself yesterday.

18 March 2010

Defeatist?

I have been asked to speak at an event called Crossroads tomorrow, (19.3.10), an event put together by a church called Newlife. It is an event for physically and mentally challenged people with lunch, entertainment, boardgames etc.
I am honored.

Ironically I have had a VERY difficult week and am feeling extremely deflated, yet I am meant to be doing a talk to inspire.
There are some people in crossroads whom are doing MUCH tougher than I, it really puts things into perspective.

Let it be known that I hate this word and all it stands for!;

defeatist |diˈfētist|
noun
a person who expects or is excessively ready to accept failure.
adjective
demonstrating expectation or acceptance of failure : we have a duty not to be so defeatist.

Life serves this as an option that clouds me ALL the time, I try to ignore it but it is always there, people see me and go "gosh he looks well".
Don't be fooled.
If you know me personally , I am private, sensitive and independent.
But life seems to want me to give in always, putting hurdle after hurdle in my path.
I'm like you in the respect that you just want peace, escapism, for everything to be alright even just for a day.

You may have noticed MUCH less activity on my blog.
In a nut shell I don't see the point.
A LOT of time and effort goes into it and it doesn't bear fruit. If you look there were hardly any comments which are a gauge that tells me how effective was it to pour my heart out. Donations.. They are VERY welcome, but I haven't had any in over a year. In fact the donate button wasn't even on the blog for about 4 months, (technical problems), I even procrastinated getting it back on the blog because it lays dormant probably makes people think I don't need it because the next person will donate.
I love putting effort into something worthwhile like fundraising events, for and not for me and sharing like I am tomorrow. Like I said I am the guest speaker but I am honouredand nothing will set me straight but this.
This is rewarding and I am humbled.

I am not going to stop blogging, just update it increments.
Enough wallowing.

What I'm going to say will go a little something like this;

My name is Phil Ransley I am 33 and the reason I have the honor of sharing my story is almost 2 years ago to the day I started to lose my balance and my speech.
I was running a very busy hair salon with 9 staff.
I laughed it off as I didn't have time to get sick and I never did.
Things got worse and in early April I disappeared into the health system for 6 months. I am starting over again in many ways.
In november 2008 I was finally diagnosed with G.A.D. antibodies, some of the signs are; slow, slurred speech, loss of coordination and balance also double vision among other things.

some quick things about my background;
* I have 2 children, my son 10 benjamin, (who gets called ben10) and my 12 year old daughter Amelia.
* I spent a few years serving God when I was younger from 18-25 and was playing drums in an indie- rock band called mustard seed, (playing pubs , youth events, high schools and party's, not an ineffective church circuit band playing "safe environments", not what we were about). I started playing the drums when I was 11. I cant play now and if I do it sounds like a chicken running across a hot tin roof.
* In 2003 I lived in Milan, Italy, working for a well known Italian hairstylist and in London where I worked as a hairstylist at the London Graduate Fashion Week. One reason I had gone to live in Milan was to learn their style and lay down some positive foundations with their fashion agency because for the next 4 years I would go over and work as a hairstylist backstage at Milan Ladies Fashion Week.

I had a realization like as if I was being hit in the face with a cold wet fish when I was in hospital while the doctors scratched there heads over what was wrong with me.

Everything I had built with my own 2 hands was crashing down around me and I had been having a luke warm relationship with God for about 10 years, I could see how the experiences I was having resulted in me getting upset and hating my life and the way it was heading.
One thing I have learned is that Gods way isn't the easy way, The straight and narrow path is hard but rewarding.
It's ok though, I went to tough school.
I am a follower of Christ, my belief makes me strong.

I was under attack, meant to give up, think that living is too hard. I still have moments of doubt and I know I'm not alone.
So I knew what I was meant to do with my life, and that is why I am here talking to you.
If any of this story has gotten to a part of you, sometimes life gets you down then don't entertain it, get on with it.
The truth is, even though it may not ever seem like it, it could be a lot worse, there is always going to be someone else worse off than us.

I thought my direction in life was set, I am now living life totally differently to how I imagined.
Someone asked me a little while ago if I would be happy if my life was still continuing along as was 2 years ago and my relationship with God was still luke warm, the answer is no. While I don't like these circumstances I'm in they could be so much worse but I'm sharing my story with you, I feel useful and I feel like I'm being used as a fine instrument, being effective and seeing the rewards.



If you can dig then leave me a comment.

15 March 2010

Wow! Lady Hearts Luncheon = Humbling.



A day of fun fashion, music, socializing and the ancient art of food and drink all for a good cause.
Me!
I really don't know what to say other than I am SO humbled by the Lady Hearts luncheon. Many ladies I didn't know, and they may not have known the cause but giving and fun was the main reason for the gathering.

Originally there was 80 seats available but 90 odd people ended up arriving.
Including my 12 year old daughter.

All the time I think about what goes through her mind about me.
I did so much and met so many people, most I met before I fell ill and now most people I knew from before my illness and they want to do something to help, im glad she sees this.

A lot of people will readily say there is a lot of evil in the world, there is a lot of good too.

Thank You Lady Hearts.
I am told there will be another one for me, watch this space!

(the lady hearts meet once a month to raise money and have fun whilst doing it)

08 March 2010

Lady Hearts Luncheon 13/3/10.



Some Bright sparks @ "Lady Heart's" have a LADIES, (sorry fellas) luncheon every few months including raffle's, fashion parade's, the ancient ceremony of food and drink etc.

These luncheons are not only for a good old girly get together, the good times are beneficial and for a reason.
Paula McCabe, (organizer), and Kristie Bragg, (owner of i hate my skirt stores), tell me the last one was for the Pacific Tsunami that devastated Samoa on 30/9/09 and left 119 people dead.

We due to media attention, forget that a Tsunami not so long ago hit and destroyed some low lying regions of Samoa. These people have very little anyway and they are happy,but the very little things they had were taken from them suddenly.
So the world Speculated and generously gave what they could and moved on so it would seem.
Our conscience urges us to remember that someone somewhere is worse off, (let's not forget haiti), and has been forgotten about because something else has happened that the media is focusing on.
It's just the way we are swayed by society.
The saying "No News Is Good News" rings true.

I don't mean to preach but "Out Of Sight Out Of Mind" is the way society is moulding us and I know first hand how easily things can fall through the cracks.

Lady Hearts does one my favorite things and brings the fun out of bad situation in a way that has no pretense & gives not only to it's cause but to things like local businesses and people that get involved by donating time and efforts.
And hey its GREAT for me!
You're not evil if your not attending or active, like I said these functions are approximately held every few months, get in touch with me and be pro-active, or better still come along!
No WAY am I putting myself in the same category as the Samoans, Haitian's or Chilean's, but I am a local man who has children and I'm doing more than a lot of able bodied people are with their time & energy, I want to earn an income again and drive again and be independent rather than socially dependent, this time the Lady Hearts reason to have fun is to help me out.
I'm honored.

So in a nutshell the details are; Next Saturday 13th March 1-4pm a Ladies luncheon for a very good cause @ Titanium bar. Exclusive fashion parade from I Hate My Skirt, (www.ihatemyskirt.com.au), & Raffle along with amazing food and 3 hour Wine & Sparkling Beverage package. Tickets $40.00, call (07) 55389677 to book. Or E-mail: william.ashworth@titaniumbar.com.au. (info@titaniumbar.com.au)

06 March 2010

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R.I.P. Alan Ransley-Smith 06/03/2008

I am trying to find my way up to the surface since my world got turned upside down Dad.

You wouldn't believe it... I still can't.


Love